Thursday 5 June 2014

Finding my Donor Family

The Background:

On Monday 6th June 1988, at 8.50pm I was sat in the kitchen at home, in Eastbourne.  I was at the table revising for my exams the following day; mum was upstairs watching TV, her feet were up after a long week working as a nurse at the local hospital.  The phone rang and when I answered a polite lady announced it was the hospital; she asked if she could speak to my mum.  A matching set of donor heart and lungs had been found.

Mum and I were transported to the hospital by a blue-light ambulance.  When we arrived there, it was soon apparent that the operation would go ahead this time and by 11.50pm I had said goodbye to my mum and was in the operating theatre.

Back in 1988, we were told little about our donor families and writing/contact was not encouraged.  I think it has now become common practice for the recipient to write initially and say thank you; if they get a reply back, then both parties can continue to correspond, should they both choose to do so.  

'Thank you' is probably the biggest understatement of the century.  You have no idea how 'thank you' really just does not cut it, until you have been there!  However, I have wanted to write that letter for years, but I never really knew how to go about it, especially as so much time has passed.  There aren't just the emotional issues, but also  practical things to consider; my donor family could have moved and the transplant co-ordinator may not be able to pass on the letter.  What if my letter caused upset, instead of bringing comfort? The last thing I want to do is cause more distress to a family who made the ultimate gift-giving decision, but I know I have to do it.  There is a mum and dad (maybe brothers or sisters) out there whose son is still here, 26 years later.  With this in mind, I am attempting to make my gratitude known - maybe social media can help to make this happen. Feel free to pass this on and repost it!

My Donor:
I don't have much information on which to go, but I do know he was a 10 year old from the Reading area.  I *think he passed away after he left school on the afternoon of Monday 6th June, 1988.  The exact date is guess work; I appreciate that the accident may have happened a week before and he spent time in hospital.  However, considering I got THE CALL just before 9pm, I can't imagine that it would have happened much after the end of the school day, because of roadside attendance of the ambulance and the process that has to happen before donation can be granted.  The chances are that happened before the early evening.

Does this sound like someone you used to know?  Did you live in Reading in 1988 and know a family that lost their son at the beginning of June? I am keen to trace my donor family - even if they don't want to write/meet, I'd love them to know how grateful I am and how great things have been, that the operation was a success and that we are still ok - both of us.

If any info is not right, but the date fits and you donated, then we may be in the right direction.  You'll have to forgive me, it was 26yrs ago and none of this is confirmed...other than the date!!!

A Red Herring?

From a TV donor drive/news interview a few days after my operation I also suspect the following: my donor mum was between 30-45 years of age and she had dark? brown? hair; from the camera angle, it looked short - a jaw length bob? a pixie cut?  The lady was interviewed about organ donation as her son had passed away a few days previously.  The camera angle was from the top of the chest up and you seemed slim, your face was at least.

Even if the description is not quite right, were you interviewed on TV about the need for organs?  Does this seem familiar?

To My Donor Mum,
If you are reading this, please know that your decision was the right one.  I have lived a good life, with many friends and family.  I am loved and I do love.

I am eternally grateful to you and your family; it was down to you that my mum and dad did not lose me.  It was because of your son that I have lived my life.  It is because of your son that I am looking forward to my 40th birthday, next year.  He has run with me for the last 26 years at a steady rate of 90bpm.  He has drawn in air for me, 16 times per minute, hour by hour, day by day.  Firemen, nurses and doctors save people all the time, he has saved me one beat at a time, one drawing in of a breath at a time, for the last 26 years.  It is an understatement that I call him a hero.

Together we have achieved much.  I've been to university, I've travelled, I learned to drive, I have fallen in and out of love.  I've had a career.  I bought a house. I have a cat!  None of this would have been possible without you, or without your lad.

I think of my donor family as my other family; you are never far from my thoughts and as the 6th of June comes round every year I try to mark the occasion in some way.

I have lots more to say to you, but a public posting is not the right place.  If you are 'my mum', or a member of the family then you can leave a comment.  No comments are published, unless I give permission, so all information is confidential.  If you don't want to be found, then this too is absolutely fine.  If you just want to know more about me, then you can read this blog.  Whatever the outcome, I hope that you know we are both ok and that I do my very best to look after your boy.  Together we are an excellent team.


Thank you from the bottom of my heart and with love xx

7 comments:

  1. Shared on FB after seeing A J Stratton's share. I really hope you find your answers. Please do share if you succeed. Malcolm Smith.

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  2. Will share with friends in the Reading area - good luck with the search.

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  3. I had a kidney&pancreas transplant 15 months ago and have written to my donor family and wrote them a poem and have had a letter back this was all done through our respective co ordinators maybe you could try the co ordinator at your hospital as they should have some info which would help you

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  4. I have shared on Facebook for you. I hope your wish to say thank you in person is granted. Good luck and best wishes
    Chaz Thompson

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  5. Hi Ray,
    Yes, I am aware of that route and I am going to enquire the next time I end up at Harefield, but 26 years have gone by. The family will quite possibly have moved, then any info the co-ordinator may have is pretty useless.. :S

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